Chris Hudson and Mary Ellen Clinkett met with Shelley Rivard to discuss the need for the Parkinson’s community to advocate with a stronger, louder voice on important issues affecting those living with Parkinson’s in Southwestern Ontario.
Together, Chris, Mary Ellen and Shelley identified areas that they felt provision or support was deficient:
- Affordability of medications
- Availability of medications
- Access to Movement Disorders Specialists and other healthcare providers
- Employment issues
- Lack of meaningful improvements in treatments and a cure (Levodopa was the last major breakthrough and that was 49 years ago!)
An article published in the Journal of the American Medical Association by Drs. Dorsey and Bloem titled The Parkinson Pandemic – A Call to Action advises that Parkinson’s is the fastest growing neurological disorder, surpassing the growth of Alzheimer’s. The article also states that the number of people with Parkinson’s worldwide will double from 6.9 million in 2015 to 14.2 million in 2040.
To combat this pandemic, the Parkinson’s community needs to speak out for much better provision and action. We must pursue similar strategies to those that in 15 years transformed HIV from a fatal illness into a highly treatable chronic condition.
Chris, Mary Ellen and Shelley are part of the Parkinson Society Southwestern Ontario Advocacy Committee. If you are interested in being part of the committee or can help access influential contacts in government, industry, finance etc., please contact Shelley Rivard at 1-888-851-7376 or [email protected]